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Deb's Day
It's Me Again 
Hello to you all. My dear dad has bought me in a laptop and portable modem so am able to connect for a half hour or so. I have just read your comments and I can't believe how many wonderful friends have logged on. Please don't worry about me. All is good now really. I am moving and not feeling sick anymore. Tragically, however, I am unable to yet come to terms with my most recent loss ; my sense of taste for the delicious Lindt chocolate reindeers. They are stockpiling here and gazing at me, forlornly nodding their little golden heads in acknowledgement of my lack of interest. I am sure my appetite for chocolate will return soon and hopefully before my stash is smuggled into the mouths of three salivating children!
I even did a few lunges tonight (20 each leg) and some squats and stretches. Sadly my exercise routine came to a rather abrupt end when I underestimated the length of the drain tubes and my modified Warrior 2 yoga stance became a little 'knotted up'. After some disentangling I resorted to a Sudoku puzzle. I could not complete the first set of press ups with any degree of reasonable technique, however, so will focus on reaching for the chocolate reindeers hourly to exercise my arm and entice my taste buds back into action.
I will not comment on this hospital but I will say that the surgeon does seem to have done a neat job. I have yet to find out why the operation was so long but I know they took all the lymph nodes they could find and really delved high into my armpit to get as many as they could. I think I have a meeting with the surgeon tomorrow but he will not tell me much anyway. Just have to wait for those all important results which should come early next week. Only then will we know what type and grade of cancer it is and then more waiting to see the oncologist to establish what the treatment plan will be.
I am sorry I am not so sparky tonight but

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Day Three 
It really has been a day of two halves. After a visit early this morning with the girls it was becoming obvious that Deb was not receiving the care that she really required. She was still very tired and it appeared that there had been no attempt to get her mobile or any review the drugs she was being administered. She was still very nauseas and she was generally not happy. We only stayed a short time and the same applied at lunchtime when Jacob and Debs Mum went in.

On our return we had a neighbourly chat with Ian (Dr) and Wendy (Midwife) and a new strategy was devised.

When a visit was made in the afternoon by a good friend there was a challenge to the nurses about Debs progress. The nurses started to respond quicker and removed some of her drugs. A good wash, massage and general clean started the process. Sheets were changed and Deb immediately became more mobile – mainly due to the change in drugs. (I shall let Deb explain if she wishes to, when she can access the blog). When I called her tonight she was a different person. We are all relieved.

Tomorrow we are going to do a number of new initiatives to assist progress and we hope to see her back home early next week.

On reflection it seems that Deb was wired up to a number of systems and the staff let the machinery do the work rather than delivering good old fashioned monitoring to help their customer (sorry… patient – by god you need some!) As a result she was left. Once Deb started to challenge the nurses they respond because it seems they don’t want complaints – not good for the statistics. Sad really. What do families do that don’t have the support that we have through friends and family that have some medical knowledge? I suppose they don’t.

On this rather cynical note I am going to bed in the knowledge that for the first time in weeks we are making some really good progress.

Deb is so grateful for all the support and thank you again to all for messages and especially Martin, Jeniece and girls for the lovely flowers and chocs (tasted great! – joking!). Love also to Nan.

Jono

PS Two more meals entered in the meal book in Wendy’s porch – fab!!


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Day Two - Recovery 
Tonight I feel that we are making some progress. When I went in at 8am Deb had had a bad night and she was tired and sad. However after reading the blogs and emails things started to brighten up a little. Special mention to the Perth ladies (women for you Ange!) who had champers for Deb and sent her a picture. She was moved to tears and wants to say a huge thank you. It really is the small surprises that make a big difference and Deb was thrilled.

Deb was really too tired for anything to day so I returned at lunch for 10 minutes. This afternoon Debs and my Mum poppped in but again she was too tired to really chat, however we all feel she has more colour and it can only get easier from now on. I have not taken the kids in yet. They have been very good and very understanding. Jacob wonders where his Mum is but in the main is just getting on with it - that is what kids are good at!! I may take them in on their own for a few minutes tomorrow but we shall see.

If you are thinking of visiting Deb I dont feel tomorrow would be a good time as she simply needs rest and I am sure we have all been there where chatting something over loads of time has a detramental effect. People are so kind but on this one I feel it is better to let her be. If you could call me first we would be grateful. I am starting to think it may be better to leave all visits until she is home, but as we have done for the past 3 weeks, it is 1 day at a time.

There is no more news on the Op and we simply count the days. I think though we are becoming more positive.

Deb's Dad and Jan have been terrific and are taking the girls up to a London show next weekend, which they are thrilled about.

Deb cannot get the internet in hospital so Jan printed all the blog entries so she can read them. Keep them coming, they make her day! Thank you James and Rita.

Anyway I am off for a pint tonight with my mate and perhaps even a game of snooker and down the working mens club (just like my grandad did 80 years ago!) Now where is my cloth hat........

Everyone take care and love the one your with.

Jono xxxx

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A Big Day 
It has been a big day for all of us close to Deb and it was good to see her this afternoon briefly after her 3.5 hour operation. I felt terrible seeing my little girl in so much pain, but like the girl she is, she managed to whisper to me that she would see me at "pump" tonight.

Jono has been through the wringer in the last month and has been at her side most of the day, I know he gave a sigh of relief tonight seeing her gradually improve after the surgery.
It seems to have gone well and she is recovering rapidly, now for the long wait to get the pathology results.

I know Deb will be anxious to get back on to bring you all up to date, but it is great to see her over part one of this ordeal. Those of you in Aus will want to know that Deb's favourite foods from there are Minties and Tim Tams.
Debs Dad

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